What is CF? Explaining CF to your Child

In this section you will find a variety of resources that you may find helpful when talking about cystic fibrosis with your children.

Getting Nosey About CF

For younger children, many of our members have found the cartoon “Getting Nosey About CF with Oli and Nush”(click on image to the right to view) a great way of helping their children to understand what the condition is about. It is aimed at children aged from 4-8 years and has been produced by the CF Trust in the UK.

Click here to download colouring sheets featuring the characters in the cartoon!

My Mummy Has CF Photo


There are also two books that have been written especially for younger children whose mothers have CF:

1. My Mummy has CF (click to read):  This book is was produced in 2000 by the Cystic Fibrosis Trust in the UK and was written by Andrea Armitage and illustrated by Jessica Stockham.

2. Go Lungs Go! (PDF version will be available soon);  This book was produced in 2000 and was written by Stephanie East, illustrated by Jessica Herston, designed by Debby Atwell and published by Axcan Scandipharm.


When a Parent Has CF Photo


“When a Parent has CF: Explaining Your Illness to Your Child” is an excellent leaflet that has been produced by the Cy stic Fibrosis Canada and is dedicated to the memory of Bob Phillips, who himself was a parent with CF and struggled with how to explain his illness to his son. It was Bob’s request that a brochure be created for parents with CF so that some of the issues he struggled with might become easier for other parents.